There's a wonderful group that I belong to which is on line - IDA This group has been a life saver for me. When you are dealing with several chronic conditions you need a good support system. People who understand what you are going through. It's not that you need sympathy because that's the last thing we all need. We just need to feel like we matter in this crazy world of ours.
People use to care about each other but that is not the way it is any longer. Joining a group does work and can be very helpful. I have come to realize that there are more people out there that are worse off than me. I have never felt sorry for myself. I have questioned why all these things keep happening - the many different diagnosis.' I am sure others look at me and think I am full of malarky - how can this woman have all these medical issues but the truth is, I do! I chalk it up to bad genes and the doctors usually always agree with me. They take a look at my family history and that usually sends up a red flag.
Invisible Disabilities Advocate was started by Wayne Connell. His wife Sherri has MS as well as Lyme Disease. He realized that there had to be others out there who were just like Sherri, who needed an outlet and a sense of community. Almost all IDA members are homebound. How great it is to talk to someone in another state who is dealing with the same issues as you are. Don't get me wrong, not everyone sits around - moans & groans about their ailments. It's just healthy to discuss what is bothering you about being sick. Better to get it out than to have it explode. IDA has a diverse group that I find fascinating. We have men, women, and young people. Many have grandchildren - and many have family members who just DO NOT understand what is happening to their loved one. The simple truth, we are sick. We did not ask for this. Who in their right mind would want to live like this?
I'm a huge supporter of IDA and if I had a lot of money, I truly would give it to them because I think what they are doing is fantastic. I applaud this group. I look forward to seeing my friends every day. We may not see each other face to face but you just know that everyone truly cares about each other. It's all good.
About Me
- K. Frankforter
- Hawthorne, CA, Southern California, United States
- Diagnosed with Fuch's Cornea Dystrophy, Cellulitis, Fibromyalgia, Degenerative Disc Disease (DDD), Sleep Apnea, Hypothyroidism, Peripheral Neuropathy, Type II Diabetes, Venous Insufficiency, Carpal Tunnel (both wrists), Rosacea, and Chronic Stasis Dermatitis, Fibro Fog and Foot Problems. You would never know I was ill or in extreme pain by looking at me. I dislike being sick, and it really bothers me when I have to cancel plans because I am not feeling well on that particular day.
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